TY - BOOK AU - Chakravarti,Upali TI - Disability and care work: state, society and invisible lives SN - 9789353287665 (ebook) : AV - HV1568 .C43 2018 PY - 2018/// CY - Los Angeles, CA PB - SAGE Publications, Inc. KW - People with disabilities KW - Care KW - Social conditions KW - Disabilities KW - Social aspects N1 - Includes bibliographical references and index N2 - Disability and Care Work: State, Society and Invisible Lives explores the lived reality of children with disabilities and those involved in parenting and caring for them. It discusses the extent to which the needs of the disabled and their caregivers have been met by health and welfare initiatives, and finds substantial gaps. The book describes vividly how the families of children with disability negotiate the uncertain journey of identifying their child's disability, obtaining a diagnosis, accessing appropriate services and their ongoing efforts to reconcile with and recognise their child's unique situation and mode of being. It critically examines the gendered dimensions involved in caregiving, the role of the state and civil society, and the legal and institutional frameworks in place. The book calls for inclusion of disability treatment at the primary care level, enhanced technology use for diagnosis and information, coordinated national level disability care policy formulation and organised action by the disabled and their caregivers to ensure their needs are addressed by the state and society UR - https://sk.sagepub.com/books/disability-and-care-work ER -