04595nam a2200769 i 4500 on1374035551 EBZ 20251029164106.0 m d cr cnu---unuuu 230327s2023 enk ob 001 0 eng d EBZ eng EBZ GBC355927 bnb 020991518 Uk 1000863778 electronic book 9781003312512 electronic book 1003312519 electronic book 9781000863796 electronic book 1000863794 electronic book 9781000863772 electronic book 9781032320441 hardback 1032320443 hardback 10.4324/9781003312512 doi 9781003312512 Taylor & Francis R724 .B73 2023eb MED 107000 bisacsh MED 050000 bisacsh MFN bicssc MAIN Brassington, Iain, author. https://isni.org/isni/000000006158600X 64971 Private life of the genome : genetic information and the right to privacy / Iain Brassington. London ; New York : Routledge, 2023. 1 online resource text txt rdacontent computer c rdamedia online resource cr rdacarrier textual sapdv EBSCOhost This innovative and engaging book argues that because our genetic information is directly linked to the genetic information of others, it is impossible to assert a right to privacy' in the same way that we can in other areas of life. This position throws up questions around access to sensitive data. It suggests that we may have to abandon certain intuitions about who may access our genetic information; and it raises concerns about discrimination against people with certain genetic characteristics. But the author asserts that regulating access to genetic information requires a more nuanced perspective that does not rely on the familiar language of rights. The book proposes new ways in which we may think about who has access to what genetic information, and on what basis they do so. Conceptually challenging, the book will prove engaging reading for scholars and students interested in the area of bioethics and medical law, as well as policy makers working with these pressing issues. Includes bibliographical references and index. Introduction : unzipped genes -- Genes and information-sharing -- What is privacy? -- Rights to know and duties not to -- What is privacy right? -- Other ways to think about privacy rights -- Privacy and reasons to disclose -- Reinventing privacy -- Reinvention and regulation. EBSCOhost "EBSCO evaluates our products based on the Web Content Accessibility Guidelines (WCAG) and the related Section 508 and EN 301 549 regulations in the US and EU. Most EBSCO products are substantially conformant with WCAG 2.2 level AA." Source: https://connect.ebsco.com/s/article/EBSCO-VPATs?language=en_US. Last accessed April 22, 2025. Iain Brassington is a Senior Lecturer at the Centre for Social Ethics and Policy in the Department of Law at the University of Manchester, UK. Description based on online resource; title from digital title page (ProQuest, viewed on May 13, 2025). Genomics. 64972 Human gene mapping. 64973 Human gene mapping Moral and ethical aspects. 64974 Data privacy. 64475 Medical ethics. 58407 Genomics 64972 Ethics, Medical 64975 MEDICAL / Genetics bisacsh 64976 MEDICAL / Ethics bisacsh 58407 Genómica embne 64977 Mapa genético embne 64978 Mapa genético Aspectos morales embne 64979 Ética médica embne 64980 Print version: Brassington, Iain. Private life of the genome. London : Routledge, 2023 9781032320441 EBSCOhost https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&db=nlabk&AN=3581249 YBP Library Services YANK 304761837 YBP Library Services YANK 18189591 EBSCOhost EBSC 3581249 Askews and Holts Library Services ASKH AH40863868 YBP Library Services YANK 19651234 92 N$T 56097 56097