TY - BOOK AU - Brassington,Iain TI - Private life of the genome: genetic information and the right to privacy SN - 1000863778 AV - R724 .B73 2023eb PY - 2023/// CY - London, New York PB - Routledge KW - Genomics KW - Human gene mapping KW - Moral and ethical aspects KW - Data privacy KW - Medical ethics KW - Ethics, Medical KW - MEDICAL / Genetics KW - bisacsh KW - MEDICAL / Ethics KW - Genómica KW - embne KW - Mapa genético KW - Aspectos morales KW - Ética médica N1 - Includes bibliographical references and index; Introduction : unzipped genes -- Genes and information-sharing -- What is privacy? -- Rights to know and duties not to -- What is privacy right? -- Other ways to think about privacy rights -- Privacy and reasons to disclose -- Reinventing privacy -- Reinvention and regulation N2 - This innovative and engaging book argues that because our genetic information is directly linked to the genetic information of others, it is impossible to assert a right to privacy' in the same way that we can in other areas of life. This position throws up questions around access to sensitive data. It suggests that we may have to abandon certain intuitions about who may access our genetic information; and it raises concerns about discrimination against people with certain genetic characteristics. But the author asserts that regulating access to genetic information requires a more nuanced perspective that does not rely on the familiar language of rights. The book proposes new ways in which we may think about who has access to what genetic information, and on what basis they do so. Conceptually challenging, the book will prove engaging reading for scholars and students interested in the area of bioethics and medical law, as well as policy makers working with these pressing issues UR - https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&db=nlabk&AN=3581249 ER -