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020 _a9789819700332
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024 7 _a10.1007/978-981-97-0033-2
_2doi
050 4 _aRA5
072 7 _aMBPM
_2bicssc
072 7 _aMED002000
_2bisacsh
072 7 _aMBPM
_2thema
245 1 0 _aResearch Partners with Lived Experience
_h[electronic resource] :
_bStories from Patients and Survivors /
_cedited by Andrew Stranieri, Grant Meredith, Selena Firmin.
250 _a1st ed. 2024.
264 1 _aSingapore :
_bSpringer Nature Singapore :
_bImprint: Springer,
_c2024.
300 _aX, 191 p. 22 illus., 18 illus. in color.
_bonline resource.
336 _atext
_btxt
_2rdacontent
337 _acomputer
_bc
_2rdamedia
338 _aonline resource
_bcr
_2rdacarrier
347 _atext file
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505 0 _a1 Paradigm shift: The lived experience of a researcher with postural orthostatic tachycardia syndrome -- 2 Who punched me in the back? Becoming a CKD researcher -- 3 Zebras have spots -- 4 To be, or not to be, that is the question: Stuttering into Academia -- 5 Living with Family Violence and The Great Escape -- 6 My journey: from patient to researcher with lived experience -- 7 A Duty of Care To Improve Processes.—8 Better Health through Integrative Medicine: A Pursuit of Lived Experience -- 9 My Personal, Professional, and Academic Journey and Lived Experience with Domestic Violence -- Endometriosis -- 11 A peek into the life of an Asthmatic -- 12 You have to be courageous -- 13 Living with Anxiety and Severe Depression -- 14 Its in your head! -- 15 How Lived Experience Mediated My Gold, Ribbons, Puzzles and Morals Research Motivations: a Reflective Introspection.
520 _aThis book aims to foster collaborations between patients who have intense lived experience with a medical condition or family violence and researchers investigating them. Inviting patients or survivors into the research team is found to have significant advantages, and chapters review the literature on the benefits they can bring to investigative research teams. The collaboration can take place at multiple stages of research from helping to research design, participating in co-investigators, contributing to the interpretation of results, etc. The conditions addressed in this book include medical conditions from anxiety, postural orthostatic tachycardia syndrome, lupus, asthma, chronic kidney disease, etc. The authors are higher degree students, academics, and active research team members who share their experiences. This is be instrumental in helping patients and survivors decide whether to transition to research. It will also support research team leaders in determining how to benefit from the new perspectives researchers with lived experience bring. The personal narratives provide insight into the challenges and rewards of having lived experience while conducting research. This book is a valuable resource for researchers in clinical fields who have been touched by firsthand exposure to a condition and have been motivated to conduct research in the respective fields. The chapters will enrich understanding for adult patients and survivors and for parents of children suffering intense experiences, who engage with the latest research publications. It will also broaden the understanding of medical, biomedical, and health sciences students interested in reading the narrative accounts of patients and survivors. Readers will gain refreshing perspectives and insights. The book relates to patients managing all kinds of noncommunicable diseases or experiences of violence, and how they can share their valuable experiences into future advancement to research. It is related to SDG 3, good health and well-being.
650 0 _aPublic health administration.
_973254
650 0 _aClinical medicine
_xResearch.
_974123
650 0 _aBiomedical engineering.
650 0 _aSocial medicine.
_962456
650 0 _aPatient education.
650 1 4 _aHealth Administration.
_973255
650 2 4 _aClinical Research.
_974124
650 2 4 _aMedical and Health Technologies.
650 2 4 _aHealth, Medicine and Society.
_969853
650 2 4 _aPatient Education.
700 1 _aStranieri, Andrew.
_eeditor.
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_4http://id.loc.gov/vocabulary/relators/edt
_974125
700 1 _aMeredith, Grant.
_eeditor.
_4edt
_4http://id.loc.gov/vocabulary/relators/edt
_974126
700 1 _aFirmin, Selena.
_eeditor.
_4edt
_4http://id.loc.gov/vocabulary/relators/edt
_974127
710 2 _aSpringerLink (Online service)
773 0 _tSpringer Nature eBook
776 0 8 _iPrinted edition:
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776 0 8 _iPrinted edition:
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776 0 8 _iPrinted edition:
_z9789819700356
856 4 0 _uhttps://doi.org/10.1007/978-981-97-0033-2
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